Comments on: Mid year review Living with Motor Neurone Disease Sun, 17 Jul 2022 12:52:04 +0000 hourly 1 https://wordpress.org/?v=6.1.1 By: Karen Sun, 17 Jul 2022 12:52:04 +0000 Just caught up on your story and the changes since the beginning of the year. It must be such a challenge for you all and not easy to cope with. I often think of you and it’s good to see and read your updates and understand more about MND.
Great photo of the marquee and I really hope you had a great celebration.
Thinking of you.
Karenx

]]> By: Martha Tue, 12 Jul 2022 18:57:49 +0000 Hi Peter, I’ve been following your diary because my husband’s ALS trajectory is similar, and your diary has let me know what to expect. We hope, as you and Sue do, to control as much of this situation as possible. I hope that your end of life is peaceful and that you can take joy in the fact that you have helped others—much love from the US.

]]> By: Rebecca Tue, 05 Jul 2022 19:39:49 +0000 Yes, definitely a masterclass in grace and dignity. Thank you for providing another detailed update; sad to read in the main but appreciate knowing how things are, especially given that the posts are increasingly difficult to write. Yes, it must all be exceedingly frustrating – especially to an INTJ!
Congratulations to Alex – great news! I hope that you had a wonderful do, and that the TD Pilot delivered! :o)
Sending hugs and lots of positive energy. xx

]]> By: Michael Seale Tue, 05 Jul 2022 16:13:36 +0000 In reply to Susan Neil.

Well said, Sue…..you sum up all our thoughts from his friends in Exeter all those years ago ! Great to see another fond reminder of an earlier wedding in Abbotts Langley / no doubt a good time was had by all. Congratulations to the Happy Couple. Take care, Peter, Mike.

]]> By: Peter Mon, 04 Jul 2022 13:36:16 +0000 Thank you, Sue x

]]> By: Susan Neil Sat, 02 Jul 2022 21:28:13 +0000 Been thinking about you all day and the joy you will must have felt for your son and his fiancée today as you celebrate their engagement in the garden. I hope it was a wonderful day.

Your diary has taught me so much. Thank you. I am in awe of your bravery and grace. It has reminded me to be constantly thankful for all the small joys in life.

Holding you in my prayers.

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