Comments on: Final few steps! Living with Motor Neurone Disease Sun, 02 Jan 2022 07:36:44 +0000 hourly 1 https://wordpress.org/?v=6.1.1 By: Peter Tue, 28 Dec 2021 08:28:37 +0000 In reply to Liz Wilson.

Hi Liz, one of the good things about my MND (in these days of electronic communication) has been the way in which long-standing connections have been rekindled. I’ll definitely follow up on your book recommendation – thank you. Best wishes for 2022!

]]> By: Liz Wilson Tue, 28 Dec 2021 08:05:28 +0000 Hi Peter, we worked together in the old BAA days and so connected LinkedIn. A great achievement by Alex for such an important cause. My friend lost her husband to MND so the cause is close to my heart. I spent some time reading your blogs today, so informative of this harsh condition and yet equally heartwarming and inspiring. I can not imagine what you and your family are going through but I am a great believer that acceptance brings peace and enables living (and finding joy) in the moment as you describe so eloquently in your blogs. If you haven’t read it yet I would really recommend reading Eckhart Tolle’s books, the insights very much helped my friend’s husband on his MND journey. Wishing you and your family peace. Liz (Wilson) x

]]> By: Susan Neil Mon, 20 Dec 2021 17:52:02 +0000 Been reading this incredibly brave , intelligent and thoughtful blog from the beginning. Very moved by it. We remember you as a lovely young man at Uni and it is so cruel and unfair that you should have contracted MND.
This blog will be an enormous help to anyone suffering from MND. I have already passed it on to someone whose father was diagnosed with it very recently . Well done for your honesty, clarity and optimism in the face of you daily grim reality.
You and Sue will be in my prayers fir comfort and strength. I know nothing is impossible with God. Ian joins me in sending our love.

]]> By: Peter Sun, 19 Dec 2021 15:23:19 +0000 In reply to Martha.

Thanks for reading and for your kind words. Best wishes from England

]]> By: Martha Sun, 19 Dec 2021 14:53:43 +0000 Your posts have helped carry me through the bewildering landscape as the wife of someone with ALS. We are a few months behind you, and it brings me a sense of peace to read them. Thank you from NC, US.

]]> By: Eileen Buttle Sun, 12 Dec 2021 19:16:19 +0000 Dear Peter. I have read your diary and thank you for the insight into this most awful disease. Needless to say both Hugh and I are overwhelmed by your bravery and willingness to communicate how the disease progresses. Thank goodness there are the means today for you to communicate even when unable to type with fingers. We also acknowledge the contribution made by Sue at your side, and the wider family. Being on one’s own with MND doesn’t bear thinking about. I’m ashamed to say I have failed to contribute to Alex’s effort but will set that right. With love Eileen & Hugh

]]> By: Korky Sun, 12 Dec 2021 08:46:48 +0000 Love the diary Peter and wish it wasn’t you. X

]]> By: Peter Sun, 05 Dec 2021 15:11:37 +0000 ]]> Oh, that’s quite a lot…You’ll be fine! 😀

]]> By: Alex Sun, 05 Dec 2021 13:52:08 +0000 Twenty more runs to be precise!!!

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