Comments for My Neuro Diary https://www.myneurodiary.com Living with Motor Neurone Disease Mon, 01 Aug 2022 19:10:35 +0000 hourly 1 https://wordpress.org/?v=6.1.1 Comment on The end of the road by Laurie and June Mon, 01 Aug 2022 19:10:35 +0000 You are very special Sue and we are thinking of you and your lovely family especially as you prepare for tomorrow.

Don’t think of him as gone away
His journey’s just begun,
Life holds so many facets
This earth is only one.
Just think of him as resting
From the sorrows and the tears
In a place of warmth and comfort
Where there are no days and years.
Think how he must be wishing
That we could know today
How nothing but our sadness
Can really pass away.
And think of him as living
In the hearts of those he touched
For nothing loved is ever lost
And he was loved so much.
– Poem by Ellen Brenneman
With much love Laurie and June xxxx

]]> Comment on Mid year review by Karen Sun, 17 Jul 2022 12:52:04 +0000 Just caught up on your story and the changes since the beginning of the year. It must be such a challenge for you all and not easy to cope with. I often think of you and it’s good to see and read your updates and understand more about MND.
Great photo of the marquee and I really hope you had a great celebration.
Thinking of you.
Karenx

]]> Comment on Mid year review by Martha Tue, 12 Jul 2022 18:57:49 +0000 Hi Peter, I’ve been following your diary because my husband’s ALS trajectory is similar, and your diary has let me know what to expect. We hope, as you and Sue do, to control as much of this situation as possible. I hope that your end of life is peaceful and that you can take joy in the fact that you have helped others—much love from the US.

]]> Comment on Mid year review by Rebecca Tue, 05 Jul 2022 19:39:49 +0000 Yes, definitely a masterclass in grace and dignity. Thank you for providing another detailed update; sad to read in the main but appreciate knowing how things are, especially given that the posts are increasingly difficult to write. Yes, it must all be exceedingly frustrating – especially to an INTJ!
Congratulations to Alex – great news! I hope that you had a wonderful do, and that the TD Pilot delivered! :o)
Sending hugs and lots of positive energy. xx

]]> Comment on Mid year review by Michael Seale Tue, 05 Jul 2022 16:13:36 +0000 In reply to Susan Neil.

Well said, Sue…..you sum up all our thoughts from his friends in Exeter all those years ago ! Great to see another fond reminder of an earlier wedding in Abbotts Langley / no doubt a good time was had by all. Congratulations to the Happy Couple. Take care, Peter, Mike.

]]> Comment on Mid year review by Peter Mon, 04 Jul 2022 13:36:16 +0000 Thank you, Sue x

]]> Comment on Mid year review by Susan Neil Sat, 02 Jul 2022 21:28:13 +0000 Been thinking about you all day and the joy you will must have felt for your son and his fiancée today as you celebrate their engagement in the garden. I hope it was a wonderful day.

Your diary has taught me so much. Thank you. I am in awe of your bravery and grace. It has reminded me to be constantly thankful for all the small joys in life.

Holding you in my prayers.

]]> Comment on With laughing song and merry dance by Laura Fri, 24 Jun 2022 15:31:43 +0000 Ramp looks amazing Peter and I’m
sure you are doing all you can to enjoy the garden.

You and Sue remain in my thoughts and prayers.
Look forward to a little visit again soon.

Take care
Laura

]]> Comment on With laughing song and merry dance by Martin Wed, 15 Jun 2022 18:04:17 +0000 delights well done those G&S superstars ☀ I remember years ago when the G&S society were doing the woman's institute doing G&S and you having to explain to two members of the audience who were trying to leave at the interval that it was really meant to be like that 🤣 they had totally missed the plot and point 😁 Sorry you’ve had to let Wareham in Dorset go but that delightful picture of Wareham Quay will remind you of those happy times and lunches at the Granary and the Priory 👍 Enjoy this summer weather and know all your friends and family love and respect you more than you probably know 😊 Huge hug 🤗 Martin]]> What musical 🎶 delights well done those G&S superstars ☀️
I remember years ago when the G&S society were doing the woman’s institute doing G&S and you having to explain to two members of the audience who were trying to leave at the interval that it was really meant to be like that 🤣 they had totally missed the plot and point 😁
Sorry you’ve had to let Wareham in Dorset go but that delightful picture of Wareham Quay will remind you of those happy times and lunches at the Granary and the Priory 👍
Enjoy this summer weather and know all your friends and family love and respect you more than you probably know 😊
Huge hug 🤗
Martin

]]> Comment on With laughing song and merry dance by Rebecca Fri, 10 Jun 2022 17:40:18 +0000 I’ve been humming the Mikado finale on a loop all day! But I’ll let you off – as it’s you! Sounds like a mixed bag of fortunes in May. The caravan’s certainly a hard one to swallow and thank goodness for the bathroom rescue! I’m glad it was all offset by some live music that obviously brought you pleasure. (The girl in green: K or A? The camera never lies so it must be my eyes!!) The cough assist sounds like a very clever gadget. So pleased you have that additional ramp, and they have done a fabulous job of it.

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