Living with Motor Neurone Disease Sat, 23 Apr 2022 06:58:28 +0000 hourly 1 https://wordpress.org/?v=6.1.1 Sat, 23 Apr 2022 06:58:28 +0000 Lots of love xxxxx]]> Great news that you have at last got the TD Pilot iPad Pro! This will help you so much as it’s a great way to communicate which is so important to you.
Also good news on the carers too. I know you will benefit greatly from their help and maybe Sue can have a well earned rest? Do you remember the trouble I had getting carers for my dad? I spent hours on the phone organising times/days etc and on day one he told them in an extremely rude manner to go away, as he didn’t need them! It took me a month to get them back!
🥴🤣
Lots of love xxxxx

]]> Sun, 03 Apr 2022 22:56:31 +0000 Congrats on passing your eye gaze trial! Did you write this using it?
I can well imagine that getting outside help is a big adjustment. I know I’d find it intrusive. Hope it goes smoothly, and you both feel the benefit.
Have a wonderful time at the caravan. Doesn’t look as if the weather will be as nice as in Ware, but still a lovely change of scene, and home from home. x

]]>