Comments on: PEG procedure Living with Motor Neurone Disease Sun, 02 May 2021 22:02:21 +0000 hourly 1 https://wordpress.org/?v=6.1.1 By: Helen M Sat, 10 Apr 2021 17:19:03 +0000 http://www.myneurodiary.com/?p=179#comment-4 Such a calm and reflective write up of your journey so far Peter and one that certainly answered many questions for me. Thank you for sharing. I will be continuing to think of you. Xxx

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By: Charlie Thu, 08 Apr 2021 18:33:42 +0000 http://www.myneurodiary.com/?p=179#comment-3 Wow Peter, that was a real eye opener (and tear jerker I’m afraid) . Thank you for being so candid, I hadn’t realised how quickly the disease has affected you.
Your matter of fact way of attacking the situations you have found yourselves in are remarkable snd a real lesson to others. I love the way you are both so organised and ‘on it’! Sending you huge amounts of love xxxx

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By: Sue Thu, 08 Apr 2021 18:02:22 +0000 http://www.myneurodiary.com/?p=179#comment-2 Thank you Peter for writing this. I am sure it will be a great help to those facing the same disease and issues.
But I don’t know how to put down in words how I feel after reading it.
Sad, amazed, proud, grateful, so may emotions but NOTHING compared to how you,Sue and the family feel everyday.
I am not surprised by your approach to your illness, meticulous, organised, well informed, as always. I always valued your advice and support during our ALGSS committee days.
I pray and hope that all the planning and alterations will help ease the difficulties of day to day life for the coming months.
I will raise a glass of non jellified red to you!
Sending love to you both xx

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By: Korky Tue, 30 Mar 2021 22:30:16 +0000 http://www.myneurodiary.com/?p=179#comment-1 Great work Peter and Sue. I’m sure this will be of huge value for many.
Btw Who do you want to play you in the movie of your diary?
Love Korky x

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