MND services & equipment provided

I’m not eligible to receive any disabled facilities grant, but I thought it would be useful to keep a record the new equipment and resources I’m being given or loaned.  So many people don’t seem to get as much… it’s time to make sure you do!

National Hospital for Neurology & Neurosurgery, Queen Square

  • Regular neurology and respiratory consultations
  • Access to advice from Consultant Nurse and MND Coordinator
  • PEG feeding tube procedure
  • In patient respiratory assessments
  • Philips A40 BiPap ventilator with modem
  • Hand splints
  • Neck support

Speech & Language Therapist

  • Predictable voice app (funded by the MNPilotDA) for iPhone and iPad
  • Voice banking service via Acapella (funded by the MNDA)

Community Nurse, Occupational Therapy, Physiotherapy and Environmental Controls Teams

  • Bespoke set of exercises
  • Exercise putty for hand exercises
  • Neck collars
  • Hospital bed
  • Walking stick
  • Four-wheel rollator
  • Mowbray toilet frames
  • Invacare TDX SP2 power wheelchair and back-up user operated wheelchair (supplied and maintained by Millbrook Healthcare)
  • PC By Voice Housemate control system
  • Shower wheelchair
  • Mobile arm support (from Oxford Specialist Disability Service)
  • Suction machine for excessive secretions
  • TD PIlot eye gaze device

Hertfordshire County Council Adult Services – Occupational Therapy Team

  • £1,000 funding towards cost of 3.5 metre wheelchair ramp (discretionary grant)
  • Advice on home adaptations
  • Referral to AST Services for rented stair lifts
  • Referral to EMS Lifts for through the floor wheelchair lift

MND Association (national and local branch)

  • £1,500 grant towards stair lift installation and rental costs
  • Rise and recline chair
  • Travelling expenses for hospital visits
  • £400 ‘quality of life’ grant for home podiatry

Abbott Healthcare

  • Supply of syringes for PEG feeding tube
  • All feeds for bolus and PEG feeding
  • Freego feeding pump

Motability Scheme

  • Peugeot Rifter Horizon WAV (wheelchair accessible vehicle)

Peace Hospice and palliative care nurse

  • Ongoing support and care
  • Access to NHS continuing healthcare